Friends and Community Associates
DEBRA was established in 1978 by Phyllis Hilton, whose daughter Debra had Epidermolysis Bullosa (EB), as the world’s first patient support group for people living with EB.
THE BUTTERFLY SKIN CHARITY
Today DEBRA UK is a national charity supporting 3,000+ members, which includes people living with EB, relatives, partners, or carers of someone with EB, healthcare professionals and researchers who work with EB. DEBRA UK employs over 350 staff and 1,000 volunteers who support us across a network of 100+ charity shops located throughout England and Scotland.